Monday, 26 October 2009

Open Letter to Martin Bolton

I recently made contact with Martin Bolton... I'd heard he was facing the difficult decision whether to treat again for 72 weeks or not.... I offered my opinion which was accepted and I hope helped him with his difficult decision... my reasoning was not only to try and help someone through a difficult time I was also considering that it was perhaps time to build bridges in the vain hope that perhaps together we could unite the HCV community and as a galvanised force we might be able to work with the "trusts" and get a better deal for people with HCV..... all too often we hear of people getting a raw deal at ATOS medicals, treatment going wrong or poor advice being given....the list is endless.....
I also faced trials of my own last week and had two events one of which has made me rethink my whole life and how I run it..... I had a blip of maddnes and attempted an overdose.... I can think of no reason why I should do this other my serotonin levels have been out of balance since treatment ended, we hear this often and I have always dismissed this idea of post treatment depression as something else, I have since changed my mind on that and do seriously believe that post treatment sufferers need as much care and support as those on treatment..... I took and overdose of paracetemol in 2 doses 12x 500mg at arounf 1 am on Sunday/Monday morning followed about 7 hours later by a further 10x500mg.....on Tuesday I realised how stupid I was in doing this and got immediate medical attention, I was assessed by a medical team and a psychiatric team and discharged on Wednesday...interestingly the psychiatric team were of the same opinion that interferon was the culprit and recommended a small dose of SSRI's..I have nothing to be depressed about ...I have no financial worries a good diet, good sleep pattern and the best supportive partner ever......
I came home at around 4 am on Thursday I was woken by the most excruciating headahce I have ever had, I was vomiting and Chrissy called the emergency GP's... the GP that came called an ambulance I was given oramorph but was vomiting as it was going in... I was photo phobic, stiff neck and my vision was affected....I was given oramorph on demand at hospital and my HCV team came to check on me... my hepatologist and the emergency medics thought I may have had a subarachnoid hemorrhage a CT scan was organised and if that showed clear then they would do a lumar tap, fortunately this was clear too.... I didn't get to see the neurologist until late Friday afternoon... he asked if I had these before, I told him they have troubled me since around 2004 but only once or twice a year, thankfully... he said as I have had them before and although this was the worst so far he was of the opinion that they were Benign Thunderclap Headaches and there is not a lot they can do but if I had any problems get my GP to refer me to his clinic.... we started to look at the history of this and just 6 weeks ago I was at the GP's with what I thought was Bells Palsy, my nose often bleeds especially from the left nostril, my hearing in my left ear is not the best.... so I am left with a lot of questions and a scary condition...will the next one lead to a bleed?
The headaches have made me take stock and I did email Martin Bolton all the details which I thought were confidential and between us in a friendly manner... I later get copies of the said same email which were circulated to none other than Mad Paul, Martin Bolton's sworn enemy between them they are using my emails to try and discredit my wife, Chrissy..I was totally amazed at the content of the copies I have have seen....little regard for the situation I find myself in...looking to play mind games with someone in a dark place...well I'm not playing children, I have more important thing to deal with than to bandy about emails and speculating.....
For your information Chrissy has been my rock from the moment I met her and no Martin she does not have Munchausens Syndrome that label you like to pin on people that you don't understand......we have yet to have an argument ... I can only think that you are enraged with jealousy that the forum she has worked so hard on promoting seems to have overtaken the one you stole from Ron Metcalfe, the one you have almost driven into the ground.... you don't seem to have learned much in the way of people skills in the past couple of years.... when we set up the Nomads we were branded as rouges, villains and generally bad people, I think we have worked hard to shake off that mantle .... I consider myself to have done very well keeping out of forum wars and have tried twice to rebuild bridges and extend the hand of friendship to you Martin but if you just want to take that hand in the hope of trying to discredit Chrissy there will be no more attempts by me to rebuild the respect I once had for you.......